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I just posted two updates--current and from the weekend. When you read about the weekend you'll understand why I'm just getting this online today. No drama to report for 48 hours… finally!

Lucas is stable and is eating really well, maybe he’ll finally start putting on some pounds! He has not had any seizures since discharge, but he is very sedated from the medication. It’s a trade-off, I guess. The major side effects of the medication are drowsiness, lack of muscle control, just seeming ”drunk.” After a few days of these meds, he is definitely all of these. Poor thing, his eyes are half shut and he can’t hold his head up very well now, which is disappointing and emotionally hard for me to see, since he was really getting good at that over the past couple months. They say it is temporary as he levels to the medication, which could take up to four weeks. I really hope this is true and it is happens more quickly than four weeks…especially since his BIG first birthday party is coming up! I think we’ll be a little further behind now on the milestones, as gaining strength and control to sit up may be a ways off. We go back to the neurologist next Friday. He is smiling and interacting a lot though, and it appears that his pain has decreased and he is not crying near as much… which is the most important thing of all. I’ll keep everyone posted as we go through this week. Thank you to all our caring friends and family, that supported and stayed right there with us hour-by-hour this weekend. I think our text messaging activity hit an alltime high this weekend!