Not much to update, we're hanging in there! So far-so good this week. We saw GI, and overall a good visit but she wasn't happy that Lucas hasn't gained any weight, and on top of that has lost a pound. She actually brought up the dreaded NG tube again, she said she understood what a rough couple months he's had and because of that she's not going to do anything drastic. But he has one month to turn it around, she wants him to gain two pounds in a month. So I'm back to sleep feeding him before I go to bed, trying to squeeze in a few more ounces for the day. As feisty as he's getting, there is NO way I could put an NG tube down his throat every night to feed him while sleeping! We can't even keep oxygen on him anymore because it has become a hazard with him pulling it off and tangling in it. I can't imagine what he'd do with an NG tube. No, thank you. I'll wake up multiple times a night to feed him if I have to, to avoid that!
Here's a few pics from the last month, hard to believe from that smile that he's had three emergency surgeries in six weeks!
Trying on our new snappy coat and hat
How cute is this?
Lucas with his friend, Grant
Lucas with his friend, Grant
My best friend, Tara, visited us a few weeks ago from Ohio
Grant is 11 months, Lucas is 20 months... and they are the same size!
We love this vest on him... He got it last year for Christmas but it still fits!
Choo Choo Charlie. I got these bibs because he looks just like a little engineer doll that my brother would never put down when we were kids (yes, I said my brother had a doll)
His favorite toy...anything with lights and music
Playing around Abby LOVES this little guy, she's so good with him
Anna and Lucas
Nicholas & Lucas. The hands hardly ever leave the mouth these days
All dressed up on Thanksgiving





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